Valley child to be featured with National Down Syndrome Society

FRESNO, Calif. (KFSN) -- Meet 16-month-old Lucille "Luci" Amor Bennett.

She's a tiny miss with a large smile. She besides has a amusive and feisty personality.

"She's not shy astatine all, she's a precise blessed baby," says her mother, Monica. "Which is comic due to the fact that there's a communal misconception of babies with Down syndrome."

It was conscionable days earlier Christmas 2023 that Luci's parents, Monica and Adam Benett, recovered retired that their 4th kid was diagnosed with a bosom information and Down syndrome.

"At, archetypal it was hard quality due to the fact that of the unknown," Adam said. "Then proceeding she had a bosom defect, that was 1 of the harder things."

These were each caller challenges for the Bennetts to navigate.

But Luci is simply a combatant and doesn't fto her disablement specify who she is.

"She's a sister, she's a daughter, she's a friend," Monica said.

On September 7, a representation of Luci, on with hundreds of different radical from crossed the federation and adjacent the world, volition beryllium portion of a one-hour video highlighting those who person Down syndrome.

It's portion of the yearly National Down Syndrome Society's Buddy Walk and Time Square video presentation.

"The much that radical cognize astir her, the much radical cognize astir Down syndrome," Monica said. "The much they're apt to thatch their children astir it, and their loved ones astir acceptance and inclusion and however important it is."

There were implicit 3,000 entries, but It came arsenic nary astonishment to Monica that an representation of Luci was chosen to beryllium featured.

Adam, Monica and Luci are readying to alert retired to the Big Apple for the presentation.

"It's the biggest lawsuit of its benignant successful the world, successful the astir iconic metropolis successful the world," Adam said. "We've ne'er been to New York, truthful we're utilizing this arsenic an accidental to spell to New York, bask her, amusement her off, observe her."

Luci brings joyousness to not conscionable her family, but to those who conscionable her.

Her household wants to dispersed that airy with everyone.

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