Fresno infant with rare disease defying the odds

FRESNO, Calif. (KFSN) -- Almost a twelvemonth ago, Action News brought you the communicative of the Lazaros.

Richard and Kaylee Lazaro had conscionable welcomed twins Rykker and Bekkem, but Rykker was rushed to the NICU and aboriginal diagnosed with Spinal Muscular Atrophy (SMA).

He was capable to person an infusion of ZolgenSMA, a one-time attraction that's lone been astir since 2020.

Since then, helium has shown improvement, but it's going to beryllium a lifelong conflict entailing medication, carnal therapy, and appointments with specialists.

"The database goes connected to the constituent wherever it's 4 to 8 appointments per week," said Richard Lazaro.

Bekkem is precise active, crawling and starting to walk.

Rykker is simply a spot behind, but helium is making progress.

He makes sounds, tin rotation over, and tin determination his arms.

"There's inactive a batch of unknowns. So, we effort to cherish each infinitesimal we tin with him," said Lazaro.

One of those cherished moments was the twins' archetypal day party.

The mates sitting earlier america contiguous says they person a antithetic outlook connected beingness compared to a twelvemonth ago.

"I cognize God has it handled. Whatever happens, happens and astatine the extremity of the time we conscionable privation him to person a bully prime of beingness and I cognize God volition supply that," said Kaylee Lazaro.

They're besides connected a mission. They've created a instauration to rise money to support up with Rykker's aesculapian expenses.

"To not lone dispersed awareness, but besides rise funds. Not conscionable for him, we besides privation to donate a definite percent backmost to SMA research," said Lazaro.

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