Meet Jeremy Her, 2024 Kids Day Ambassador

MADERA, Calif. (KFSN) -- Walking up of his dada and siblings, Jeremy makes his mode down the hallway astatine Valley Children's -- a acquainted spot for the nine-year-old.

When Jeremy was a newborn, helium was diagnosed with a humor upset called Hemoglobin H Constant Spring.

"He explained to america that helium needed blood," says Kong Her, Jeremy's dad. "So yeah, and arsenic soon arsenic we saw him, the doctor, they gave him humor that day. He got a humor transfusion that day."

It was a daze to Kong erstwhile helium and his woman learned that Jeremy and his siblings inherited the condition.

"I'm the carrier, and past my woman has thing successful it excessively -- that's wherefore they each person it," Kong said. "Then again, I bash person 5 kids, and past 2 of them don't person it, the 3 do."

Jeremy, his five-year-old sister Tinsely, and two-year-old member Ryser each spell to Valley Children's for transfusions.

These hap each 3 to 4 weeks.

RELATED: Kids Day 2024 benefiting Valley Children's Hospital

The mornings usually commencement with humor work, followed by a speedy wound to eat.

Then, an elevator thrust up to the Ambulatory Treatment Center, wherever pediatric hematologists spot the 3 for their transfusions.

"Once it gets down to adjacent that 3rd week, wherever they request to spell get blood, I tin spot the difference," Kong said. "They don't devour arsenic much, you know, they commencement getting much pale. But yeah, that's conscionable the mode it is. But different than that, but it erstwhile arsenic soon arsenic they get their blood, it's similar different energy."

Jeremy has a batch of vigor to stock with those astir him.

As soon arsenic helium got much comfy successful beforehand of the camera, we'd drawback him bustin' retired Fortnite creation moves oregon droppin' to the level for immoderate push-ups.

Strength is what helps Jeremy and his household look the challenges brought connected by the humor disorder.

"Their unwellness wasn't chosen," Kong said. "You know, it's gifted. The lone champion mode I tin bash is enactment them each the way."

Jeremy's resilience is akin to his favourite superhero, Spiderman.

To his parents. it is simply a testament to the attraction helium receives astatine Valley Children's.

"Without Valley Children's, I don't cognize if my kids are going to survive," Kong said. "Because each the nurses and doctors here. they cognize everything. They're similar our heroes."

Jeremy's parents and Valley Children's anticipation helium doesn't person to get transfusions for the remainder of his life. If they find a match, a bony marrow transplant would assistance Jeremy person an adjacent amended prime of life.

For quality updates, travel Amanda Aguilar connected Facebook, Twitter and Instagram.