Fresno family starts holiday campaign to raise funds for baby with rare disease

FRESNO, Calif. (KFSN) -- A vacation astatine the infirmary the Lazaro household spent Thanksgiving not astatine location similar galore families, but by the bedside of their young son, Rykker.

We archetypal met Rykker erstwhile helium was conscionable a period aged and diagnosed with a uncommon illness Spinal Muscular Atrophy benignant 1.

SMA causes respiratory issues and leaves Rykker much astatine hazard if helium catches a microorganism the present 14-month-old precocious caught two.

He was admitted to Valley Children's conscionable days earlier Thanksgiving with a collapsed lung and stayed determination for much than a week after.

"I deliberation what makes it peculiar is the memories that you person with the radical that you love," said Richard Lazaro, Rykker's father.

"And I deliberation that those memories could beryllium made successful immoderate scenario, successful immoderate scene. So for us, it was conscionable important to beryllium determination with him."

His parents, 3 older siblings, and duplicate member don't fto clip successful the infirmary dull the vacation spirit.

Rykker has appointments 6 to 8 times a week with specialists to code his symptoms pushing him to caller milestones.

"Getting to the property of 1 is simply a large milestone, similar I mentioned, 65 don't marque it to that percent of SMA benignant ones," said Lazaro.

"Now, the biggest 1 would beryllium getting past the property of two, because, arsenic past has shown, 95 don't marque it past that. So, we're hoping that everything that we're learning astir the upset and the mode the muscles move, and the specialists that we're taking them to, benignant of each helps out."

Most of his attraction is astatine Valley Children's, but the household besides travels to Stanford.

At home, helium depends connected respective machines that outgo tens of thousands of dollars.

"This CoughAssist was $35,000," said Lazaro. "35,000, and past the shaker vest was similar 40, 45."

To assistance wage for attraction and rise consciousness astir SMA. They've created a instauration called Rykker Strong.

On Giving Tuesday they kicked disconnected a run lasting done the extremity of the twelvemonth to stitchery donations and assistance their small lad combat this uncommon disease.

If you would similar to donate click here.

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