Baby Bodie Jensen, who Action News profiled aft helium was diagnosed with a uncommon familial disorder, has died.
FRESNO, Calif. (KFSN) -- Baby Bodie Jensen, who Action News profiled aft helium was diagnosed with a uncommon familial disorder, has died.
Bodie passed distant connected July 2.
The newborn spent the archetypal 10 weeks of his beingness successful the Neonatal Intensive Care Unit astatine Community Regional Medical Center.
RELATED: Fresno household raising consciousness for uncommon seizure disorder
A bid of tests revealed Bodie had a uncommon familial upset that causes hundreds of seizures a day, and it's often resistant to medication.
His parents, Ali and Conner Jensen, were hopeful erstwhile the Epilepsy Foundation connected them with researchers astatine UC Davis.
Scientists astatine the Silverman Lab were conducting objective trials connected this peculiar disorder.
That task has since been stalled owed to caller backing cuts
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